Tomorrow morning I have a pre-op appointment (physical/blood/etc)  and I will be talking to Kimberly then.  I hope to either sneak in another room and change the schedule (swapping 11.16 for 11.23) OR - i hope to get some really solid signs that Dr. Oro is indeed ready and moving forward. Being his first one back is also weighing on this uncertainty in my head.   I guess stay tuned, I will let you know what tomorrow brings.
In the fall of 2008 I was diagnosed with Chiari Malformation -Type 1. I learned to accept & live with my symptoms and was trying to put off the surgery as long as possible. In the fall of 2010 I developed Syringomyelia and was told I should have surgery asap. I had a successful decompression surgery by Dr. Oro on 11.16.10 and with as good as I feel, I would like to consider me "cured"
Sunday, November 7, 2010
counting - 9 days away
I have been here before - 9 days away from surgery.  The same things are running thru my head as they were a month ago, yet it has been a very different count down.  I was pretty fixated on the date. 10.12.10 and said it over and over again in my head.  I looked at in on the calendar, planned things around that date - calculated to figure out when i may feel better, when i could drive again - and dye my hair. (yes, i have to wait 6-8wks  - you might all figure out my hair is really dark dark brown)  So, I clung to the list of pre-surgery things to do and not to do and followed it like a bible.  This time - not so much.  I mean, don't get my wrong, I have re-read it and I am trying to get my head in the game to be strict enough to drink those 8 glasses of water - BUT it feels different.  Clearly I am not allowing myself to really honestly accept that I am having surgery in 9 days.  
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we are all thinking of your and sending good vibes your way. i LOVE that pillow you made; totally worth the trips to joanne's. mia and a blonde album...love that kid and please tell ryan how awesome she looks one tooth down. hug yourself and the family for us. love - sarah
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